Welcome to The Hidradenitis Suppurativa Trust, we are the only UK charity dedicated to the raising of awareness, understanding and support for this chronic, debilitating skin disorder.
We aim to increase public knowledge and educate the medical profession on the symptoms, treatments and severities of HS. All profits made by us go towards achieving our goals, which we hope will eventually include the development of a cure.
Support Our Work
Fundraising is the heart and soul of any charity, without it, our aims and objectives would never be met.
So why not get involved yourself, whether your taking part in one of our organised events, or planning your own, we would like to here from you.
National HS Awareness Week 10-16th June 2013
The event will take part from the 10th to 16th June 2013, and will create an opportunity for everyone to create awareness and understanding of HS.
If you suffer from HS, care for someone who does, or if you would just like to help our cause, please contact us for more information on how you can hold your very own event during this week.
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Share your story with us
In my late teens early 20's I had recurrent episodes of tonsillitis, after a few years it became a monthly problem so I was referred to the hospital to have my tonsils removed. The operation was a success it was great!
However, within 6-12 months I noticed a large cyst/lump in my groin area. I went to my Gp who prescribed a course of antibiotics. The cyst/lump was very painful and made it difficult to wear underwear, sit, walk. Eventually the cyst burst and lots of thick puss was released. I was left with a small sinus hole which lasted for months. Another cyst/lump appeared within the same area and resulted in another sinus. This also lasted some months. I went to see my nurse as I was concerned the sinuses were not healing. The nurse inserted a probe into the sinuses to see how deep they went. They were shockingly deep and seemed to be joining. The sinuses leaked constantly and I was referred to the hospital. I had surgery to remove the infected tissue and I thought this would be the end....how wrong I was!
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Many people do not understand HS, and how it can affect the life of a sufferer. Each month we will feature the stories and experiences from the perspective of HS sufferers.
The HS Lottery has arrived
The HS lottery gives you the chance to win up to . For only £1 per week you will be allocated with a six digit lottery number, with the winning numbers selected at random every Saturday.
Click here to enter, or if you are an existing player, check your numbers now.
Running between this, and next years HS Awareness Weeks, we will be running an e-petition. We are petitioning the the DWP to make DLA applications easier for those who are unable to work due to HS. Many people are unable to work due to HS, and have been unsuccessful in their DLA application, due to the decision makers being unaware of the condition. We want the DWP to recognise HS as a potentially debilitating condition, and to have specialist advice on hand when making decisions regarding HS patients. Click here to sign our on-line petition. Alternatively, download our PDF version here, fill up the form, mail it back to us, and we'll do the rest.